Rashel Fitchett, whose spouse has ALS, shares her journey from an unexpected love story to building a life in the remote Cascade mountains. She reflects on the shift from their dream retirement to navigating Doug’s diagnosis, the lifestyle changes they embraced to support his health, and the balance they’ve found… Read More
Amanda Sifford shares her experience working as a school psychologist while living with amyotrophic lateral sclerosis (ALS). She reflects on workplace support, self-advocacy, and the importance of finding joy and balance through the challenges of fatigue and disease progression. Read More
Megan Williams shares her journey through her father’s ALS diagnosis, from the emotional toll of caregiving to the importance of planning for end-of-life care. She reflects on grief, adaptation, and the strength found in honoring a loved one’s wishes with compassion and clarity. Read More
Amanda Tam shares her experience living with ALS while continuing to travel and explore new places. She talks about navigating accessibility, managing medications, and how planning ahead helps her embrace each journey with confidence and joy. Read More
Al Freedman, PhD, a psychologist who specializes in rare disease communities, discusses how to manage social isolation while living with amyotrophic lateral sclerosis (ALS). He shares his background as a father to his late son Jack, who had spinal muscular atrophy (SMA), and how his role as a caregiver has… Read More
In honor of ALS Awareness Month, ALS patient advocate Dagmar Munn reflects on the legacy of the Ice Bucket Challenge — its origins in the ALS community, its impact, and why it still matters today. As the campaign finds new life in other causes, Dagmar urges us to remember its… Read More
