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Fundraising, advocacy are focus of this year’s ALS Awareness Month
https://alsnewstoday.com/news/fundraising-advocacy-focus-this-years-als-awareness-month-us/
‘ALS Community Spotlight’ to tell patients’ stories in their own words.
Recognized each May, ALS Awareness Month provides an opportunity for people living with amyotrophic lateral sclerosis and their families — as well as healthcare professionals, researchers, experts, and advocates — to increase awareness and education in the community at large, and to raise funds, all in the hope of ending ALS.
ALS Awareness Month has been observed in May in the U.S. since 1992. This year’s efforts will continue to unite and support those living with the neurodegenerative disease, which is estimated to impact around 30,000 people in the U.S., with about 5,000 new cases being diagnosed each year.
Globally, ALS affects approximately four per 100,000 individuals, and the numbers are on the rise, partly due to an aging population worldwide.
But ALS awareness isn’t only about the statistics, so ALS News Today is using this year’s awareness month to highlight the stories of people living with the progressive neurological disorder. Its new campaign, “ALS Community Spotlight,” will focus on these individuals and their hopes, struggles and treatments, and overall quality of life.
The project will give people the opportunity to raise awareness about what life is like with ALS, to highlight the charitable organizations that support them, and to raise funds for continuing research into treatments.
Read more at: https://alsnewstoday.com/news/fundraising-advocacy-focus-this-years-als-awareness-month-us/
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