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I always believed that my ALS trigger was my second cataract operation in November of 2021. My first symptoms right after that were weakness in my left hand and I had been given a very bad IV in my thumb joint, right on the bone for that surgery. I also started losing my singing voice around then and by Christmas I was slurring words and having trouble swallowing pills.<div>
Going back to check records, I had my third COVID shot on October 16th.. perhaps another trigger.
I was diagnosed with bulbar onset ALS in October of 2022. I had another booster in 2022 and I had COVID this past August. And yet, I have an appointment for another booster next Wednesday. Having COVID wasn’t fun. And getting those giant pills in the feeding tube was a real hassle. So, despite everything, I believe in the science and will continue to receive vaccinations. I had my flu shot right on time and only held off on the RSV shot this year because it was brand new.
Having ALS is no picnic. I can’t speak, eat, or drink and my left hand and arm are useless. But I am still mobile and fairly self-sufficient. Getting sick and ending up in the hospital will cause a much faster progression of the disease, in my opinion, so I will continue to take care of my health as well as I can. This is my conclusion for ME because I have always tolerated vaccines fairly well and it certainly beats the alternative.
Very interesting discussion. At some point in the future, hopefully there will be some definitive answers on this subject!
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