ALS News Today Forums › Forums › Living With ALS › Do you have Familial ALS? › Reply To: Do you have Familial ALS?

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    Member
    May 8, 2025 at 2:19 pm

    I have C9orf72/Als. My mother died for FTD in2009: and therefore, I believe I got this from my mother. I was diagnosed in January 2025. I am on Riluzole. It started with my right hand and I have noticed I walk slower, and have cramping in my legs in the morning. I am actively searching for appropriate drug trails.

    Carla

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