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Interesting topic about our day’s level of energy and movement. The idea of reserving for days that are busy is great suggestion which you would think after 9 yrs living with the uncertainty of this disease I’d have figured out! Most days it’s more roller coaster from hour to hour which does definitely affect my mental/physical well being which drives me more crazy not realizing this is life now days and still thinking when those great moments occur I can paint the shed, wallpaper the dining room and maybe even iron!!! I have a therapist through my Teleheath Clinic who likens the down times to a bear hibernating to rest for the next season or moment, this thought sees me through those times when the down time can last few days not hours. They also recommend that I go to in person clinic for assessment and follow up with PT, Speech and Pulmoogogist which I have locally and they actually coordinate which helps me more than anything. Thanks for your patience and time, needed these thoughts today! Chris