• Awareness and Advocacy

  ALS Advocacy

  Posted by Amanda on March 5, 2021 at 8:20 am

  My family has been involved with ALS Advocacy and fundraising for years, and years. Jessica, my cousin, was diagnosed in 2005. She fought ALS, she fought for laws and advocacy to help our community and she fought for pALS’s rights. She lived with ALS for about 15/16 years.  She did this interview not to long after my father passed. Although she left us in 2019, she continues to inspire and motivate me.  Her children are part of the reason I volunteer for medical research.  Have a listen and let me know what you think. https://youtu.be/KgtlqOGr_NQ

  Amanda replied 2 years, 9 months ago 1 Member · 0 Replies

  • ALS Awareness
  • ALS mental health
  • ALS research
  • fALS
  • pALS
  • pre fALS
• 0 Replies

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