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  • ALS Clinic Survey needs YOU!

    Posted by DHOP on July 8, 2024 at 1:31 pm

    Hey friends, I’ve been helping the folks at the ALS Geospatial Hub. If you haven’t been to this site, it’s an amazing, free information resource. I’m a visual person, so I like to click around and just see the different maps and information. I’m not gaining anything from this and the Geospatial Hub is volunteer driven. I just feel compelled to share good information.

    I DO have a request for Pals and caregivers. The hub has a link to the ALS Clinic Experience survey.

    The survey took my family about 8 to 10 minutes to complete..not too bad.

    The “Clinic Advisor” will be like Yelp, but for ALS clinics. But ultimately, it will become a resource, so that folks will be able to see how their doctors and clinics rank and people will be able to make informed decisions about their doctor or clinic choices. The ALS Geospatial Hub also shows the disparities in certain populations and distances to clinics, toxicity levels around the US as well as some legislative maps.

    Please take a few minutes to complete the survey, share the link, and spread the word among the ALS community! It will help us all be more informed. Knowledge is POWER!

    All my best,

    D Hop

    DHOP replied 1 week, 2 days ago 1 Member · 0 Replies
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