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ALS travel tips and woes
With summer almost here, many of our forum members are busy making travel plans. Every year, transportation and accommodation options improve– and some (unfortunately) don’t.
What experiences have you had while traveling with ALS? Do you have any tips to share with us?
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7 Replies
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It’s been over a decade since I travelled cross-country with my ALS needs. At that time, hotel/motel accessible rooms were available but inconsistent in true accessibility. Especially the bathrooms – – towel bars standing in for grab bars, walk in showers with poorly placed grab bars, and flimsy shower seats placed faaaar away from the faucet handles. I wonder if current traveling pALS have found things have improved at all?
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One tip, if you are still transferring with a walker, I used the commode chair in the shower on a cruise ship so I could push myself up with my arms. Worked great.
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In their recent MDA magazine, they recommend train travel over flying – – trains are more accommodating, they say. Has anyone had experiences with either that support trains over planes?
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I recently took a train and I did not think it was especially accessible. I was on an amtrack in the west. The seats are very roomy. But getting to the seats, is tight with stairs.
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Thank you for the head’s up CCrone. Accessibility is so important.
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Here are some great tips from ALS patient Amanda Tam:
https://alsnewstoday.com/video/amanda-als-travel-tips-sturdy-wheels-airline-calls-time-enjoy/?utm_source=ALS&utm_campaign=e11b237f30-Email_ENL_US_ALS&utm_medium=email&utm_term=0_0593028b75-e11b237f30-72271217 -
Has anyone been to a beach that has accessible wheelchairs for rent? I have been to a handful of beaches along the East Coast and found 0 that rent out accessible wheelchairs.
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