ALS News Today Forums Forums Navigating ALS Challenges Diagnosis​ ​Information​ ​and​ ​General​ ​Questions Four Kinds of Services for pALS and Caregivers!! What could help you?

  • Four Kinds of Services for pALS and Caregivers!! What could help you?

    Posted by Amanda on September 9, 2022 at 6:56 am
    What kind of help or services would help you the most?  

    In-home respite care usually involves a trained professional (often from a home health agency) who comes into the home to provide necessary care during a period of time when the caregiver is away. In some communities, there may be a church, volunteer agency, or group that provides respite care by a volunteer.

    Where can you find respite care or other needed services in your community?

    Did you know that Hospice provides Four kinds of Services?

    “Routine Home Care. Routine home care is the basic level of hospice care provided in your home, assisted living, or nursing home. This level of care offers a team approach by hospice staff and your physician to provide comfort at the end of life. This hospice level of care includes medical social services, spiritual support, volunteer visits, bereavement counseling, medication, equipment, and all supplies related to your loved one’s hospice diagnosis.

    Continuous Home Care. The level of hospice care called continuous home care is when a nurse stays in your home for an extended period of time if your loved one is experiencing a medical crisis and severe symptoms such as unrelieved pain or shortness of breath. However, during a medical crisis like this, your hospice physician or nurse may decide the general inpatient level of care will be a better option to address your loved one’s needs.

    General Inpatient Care. Sometimes, severe pain or other symptoms require an advanced level of care that is more effectively provided during a short stay in an inpatient hospice facility. If your loved one’s needs intensify, the hospice team may recommend this level of hospice care and transferring your loved one to the inpatient level of care at The Samaritan Center at Voorhees or Mount Holly. The goal of inpatient hospice care is to control severe pain and symptoms so that your loved one can return home to their family and familiar surroundings, if possible, and resume routine hospice care at home.

    Respite Care. The respite level of hospice care is provided on an occasional basis and offers a planned, short-term break for unpaid family caregivers from the challenges of assisting a loved one with an advanced illness. It can only be provided at a Medicare-certified inpatient hospice facility, hospital, or skilled nursing facility that has the ability to provide around-the-clock nursing care should your loved one’s plan of care require 24-hour care. Please speak to your Samaritan hospice nurse about the respite level of care.

    Have you reached out to your local Hospice Organization to see if they can help? What was that experience like for you and your family? What advice do you have for others?


    Amanda replied 1 year, 10 months ago 0 Member · 0 Replies
  • 0 Replies

Sorry, there were no replies found.

Log in to reply.