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Has having ALS changed your daily diet?
ALS symptoms can vary from one pALS to the next. Most of the ALS patients I know have made changes to their diet– whether it be to improve their overall nutrition or accommodate an ALS-related issue with eating.
What changes have you made? Do you have any tips to share or questions for our forum members?
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2 Replies
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Prior to being diagnosed, I was a healthy lacto-ovo-vegetarian. But my neurologist convinced me to increase my protein, which I did – – and added animal protein to my daily meals. I believe that change helped my body maintain strength … and, it was a lot easier for my husband-caregiver. Four years into ALS, I began to have trouble swallowing thin liquids. So, I’ve been adding a thickening powder (Thick-it) to all my beverages. No other changes to my diet since then.
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My trouble swallowing began a year ago, so I have learned to avoid very dry foods and to take my time. Alas! No more lovely big fat pretzels. But I am finding other things to enjoy and know that my tastes are changing. Cottage cheese and fruit are a real treat. I find myself enjoying anything with vinegar and wonder if it is because the strong flavors are more enjoyable now. Why do I love pickled beets when I never bothered with them before?
I know I am a healthy eater, but probably need to educate myself on ways to increase my protein and fiber intake since I am not eating as much as years ago.
I was recently diagnosed but have had continued symptoms for more than 5 years. I thought I was aging faster than everyone else . 74 years young.
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