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Has having ALS changed your daily diet?
ALS symptoms can vary from one pALS to the next. Most of the ALS patients I know have made changes to their diet– whether it be to improve their overall nutrition or accommodate an ALS-related issue with eating.
What changes have you made? Do you have any tips to share or questions for our forum members?
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4 Replies
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Prior to being diagnosed, I was a healthy lacto-ovo-vegetarian. But my neurologist convinced me to increase my protein, which I did – – and added animal protein to my daily meals. I believe that change helped my body maintain strength … and, it was a lot easier for my husband-caregiver. Four years into ALS, I began to have trouble swallowing thin liquids. So, I’ve been adding a thickening powder (Thick-it) to all my beverages. No other changes to my diet since then.
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My trouble swallowing began a year ago, so I have learned to avoid very dry foods and to take my time. Alas! No more lovely big fat pretzels. But I am finding other things to enjoy and know that my tastes are changing. Cottage cheese and fruit are a real treat. I find myself enjoying anything with vinegar and wonder if it is because the strong flavors are more enjoyable now. Why do I love pickled beets when I never bothered with them before?
I know I am a healthy eater, but probably need to educate myself on ways to increase my protein and fiber intake since I am not eating as much as years ago.
I was recently diagnosed but have had continued symptoms for more than 5 years. I thought I was aging faster than everyone else . 74 years young.
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I am 74 newly diagnosed three weeks ago but started with foot drop which I thought was foot drop Lil over a year ago but it turned out to be ALS I have no idea what I should be eaten. I haven’t gotten to see the ALS specialist Till July 9 at Northwestern Hospital in Chicago. What should I be eaten?
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Hello Styxie, I was also worried about what I should (and should not) be eating when I was first diagnosed. Over the past 15 years, I’ve observed that there is no special diet to follow. Just eat healthy meals several times a day. No special vitamins or supplements – – try to get these nutrients directly from your food. Now is not the time to put your body under stress by trying a wacky diet. Don’t let the spammers and pseudo-experts tell you that you can cure ALS through food, supplements, or other ingestibles. Just eat healthy, nutritious food.
I’m sure the dietitian at your ALS clinic will be able to provide you with further guidance. Best wishes to you and welcome again to the forum.
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