Here I Go Again
The song, “Here I Go Again” by Whitesnake is rattling around in my brain today. My 6-month pre-fALS clinic visit is coming up on November 30, and December 1, 2022. I’ll spend two days at the University of Miami Medical Center meeting with a couple of doctors. My medical tests typically include an MRI (magnetic resonance imaging) of the whole body, an EMG (electromyography) which tests nerve conduction, and a series of blood tests, urine tests, lumbar puncture, Q-Motor (fine motor skills) and gross motor skills. They also do cognitive testing, memory testing, and a series of lifestyle questionnaires and other inventories.
I’ve gone to these visits and received both good and bad news. The process is not fun as you well know, but the stress of learning what the results are is the most difficult thing for me to deal with. It terrifying for the most part. Especially when I feel like my symptoms have worsened.
When you go for clinic visits and they are monitoring your progression do you find it stressful? How do you mentally prepare? Do you do anything enjoyable after your visit as a “treat” to help you decompress? How do you keep track of all the information the team/doctor shares with you?
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