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Managing your priorities while living with ALS
Although my life was always filled with priorities and a full “to-do” list, I now recognize that they were muddled with things I thought I should be doing. Looking back, I was overcommitted and struggled to get it all done. That mindset was manageable for many years, but not once I was diagnosed with ALS.
Suddenly, I had too much to do and too little time. My energy didn’t match what I thought had to be done, and I’d find myself wondering, “Why am I doing this anyway?”
How have your personal “to-do” list and priorities changed? Are you managing the adjustment, or wish to have more tips to learn “how?”
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2 Replies
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I’m developing a “legacy folder” containing Books having special meaning for me, Words to live by, etc. so those who have loved me will also know me.
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For me, it’s been a process of identifying energy-wasting activities, being okay with asking for help or letting others take over, and doing things within my abilities and that have value.
– using an electric toothbrush instead of a manual one. Using a walker instead of struggling to keep my balance.
– giving up cooking and laundry duties. But do help with planning meals.
– giving up teaching in-person workshops and classes … and instead, sharing my knowledge through writing.
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