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July 4, 2021 at 12:25 pm #19790Dagmar MunnKeymaster
What: This study is looking for 10 more participants. It is 10 weeks long and requires participants to attend 5 telehealth assessment sessions, 2 telehealth training sessions/week with a speech-language pathologist during which participants will complete the respiratory strength training program. Participants can earn up to $250 for participating.
Background: A Ph.D. candidate in the Department of Speech, Language, and Hearing Sciences at Purdue University under the mentorship of Dr. Jessica Huber, is conducting a study on people who have ALS. This is a new NIH-funded telehealth treatment study entitled “Efficacy of Expiratory Muscle Strength Training to Improve Communication in ALS” that aims to provide knowledge regarding the efficacy of expiratory muscle strength training on communication, cough, and psychosocial functions for people with ALS when implemented through telehealth.
To participate, you must meet the following criteria:
• Diagnosis of ALS
• Within the early stages of disease progression (able to talk, breathe, and eat independently)
• Between 40 and 70 years of age
• Speaker of English
• No history of neurological disease, other than ALS
• No asthma or respiratory problems (COPD, emphysema)
• No head, neck, or chest surgery (except mastectomy)
• Non-smoking for the last 5 years
• No reliance on mechanical ventilation (including CPAP)
• Have a family member/caregiver willing to assist
If you are interested, please contact Bri Kiefer at any of the following:
If you become a participant in this study, please share your experiences and thoughts with us. Was telehealth learning helpful in this type of study?
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