• Posted by Amanda on January 15, 2020 at 7:01 am

    As we know in the worlds of science, medical research and ALS, things change rapidly (although not rapidly enough when it comes to treatments and cures).  It is vital that pALS, caregivers, and people who have friends and loved ones diagnosed with ALS or other neurodegenerative diseases. It is important that when you are looking for information that you are going to reputable websites (or places) that provide reliable information that is backed by science and data. When you have ALS, it is important to be knowledgeable about diet and exercise, possible treatments, risk factors, genetic/medical information, clinical trials, places to help with assistive technology, support groups for pALS and loved ones, Living Well with ALS, and many other topics. There are some great resources that most of us know and trust like the ALS Association, and ALS News Today.  For more information about ALS check out this website https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Amyotrophic-lateral-Sclerosis-ALS-Fact-Sheet from NIH. It reviews everything I’ve mentioned and more. Are there other reputable resources that are backed by science and data that you can share with our community?

    Amanda replied 3 years, 10 months ago 1 Member · 0 Replies
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