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    • #14259

      Finding out you have ALS is overwhelming. After numerous doctor appointments, tests and conversations, the doctor confirms you have ALS.  Did you doctor take the time to explain what ALS was? Prior to the diagnoses did your doctor explain possible outcomes other than ALS? When your ALS diagnoses was confirmed were you able to focus and absorb all the information? When you were initially diagnosed with ALS, what resources did your doctor or medical team provide? Did they connect you with your local ALS Association? Did they inform you about support groups or web-based informational sites such as ALS News Today? What resources have been the most beneficial?

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