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  • Support and Services

    Posted by Amanda on March 31, 2019 at 12:08 am

    There are several organizations I’ve come across that help patients with ALS and their families. If  you know of any organizations and how they help would you please share their information?

    Here are a few I’ve heard about or been in contact with:

    This list is from

    ALS Guardian Angels

    This is a 501(c ) (3) public charity offers grants to help ALS patients with expenses not covered by insurance or other reimbursement programs.

    ALS Recovery Fund

    The ALS Recovery Fund seeks to aid families impacted by ALS by providing financial assistance to those in need of equipment and/or supplies. The Patient Care Fund is available to all residents of Miami-Dade, Broward, Monroe and Palm Beach County diagnosed with ALS

    Les Turner ALS Foundation

    The Les Turner ALS Foundation offers a variety of financial assistance to ALS patients and their families. This includes the Ralph Russo Patient and Family Services Grant Program, the Dan Nelson Respite Care Grant Program, loan banks for augmentative communication devices and durable medical equipment and the Stuart Rosen ALS Transportation Fund.


    This a 501(c)(3) national non-profit information resource dedicated to helping people locate assistance programs to help them afford their medications and other healthcare costs.

    NeedyMeds’ mission is to be the best source of accurate, comprehensive and up-to-date information on programs that help people facing problems paying for medications and health care; to assist those in need in applying to programs; and to provide health-related education using innovative methods.

    NeedyMeds is funded by small grants, donations, sponsorships, subscriptions to PAPTracker, and syndication of some of our database information. NeedyMeds also works with the patient assistance programs of several pharmaceutical distributors.

    HealthWell Foundation

    The HealthWell Foundation reduces financial barriers to care for underinsured patients with chronic or life-threatening diseases.

    Amanda replied 5 years, 1 month ago 2 Members · 2 Replies
  • 2 Replies
  • Marilyn Rowland

    April 11, 2019 at 2:07 pm

    Compassionate Care ALS is in West Falmouth, MA.

    This is the description from their website on who they serve:

    CCALS provides services to all people impacted by ALS. We offer individualized support to those currently living with ALS, their families and caregivers. In addition to helping our clients navigate the complicated logistical and emotional considerations that follow an ALS diagnosis, CCALS provides heart-centered listening and the voice of compassion as families grapple with difficult choices. CCALS stands alone in our approach to delivering support and services to our clients, which we tailor to the individual needs of each patient and their support network. CCALS is committed to our unique model of equipping patients to face end-of-life issues with dignity and peace.

    We provide wheelchair accessible vans for use for individual clients, caregivers and families, living in Massachusetts and surrounding states.

    CCALS provides new equipment, in addition to equipment that was donated and refurbished. The items we offer include; wheelchairs, ramps, bath chairs, mattresses, voice amplifiers and speech augmentative equipment and communication boards.

  • Amanda

    April 11, 2019 at 8:58 pm

    Thank you!

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