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Support and Services
There are several organizations I’ve come across that help patients with ALS and their families. If you know of any organizations and how they help would you please share their information?
Here are a few I’ve heard about or been in contact with:
https://www.fifthseasonfinancial.com/blog/financial-help-als-patients-families/
This list is from simplenutrition.com
ALS Guardian Angels
This is a 501(c ) (3) public charity offers grants to help ALS patients with expenses not covered by insurance or other reimbursement programs.
http://www.alsguardianangels.
com/what%20we%20offer.html ALS Recovery Fund
The ALS Recovery Fund seeks to aid families impacted by ALS by providing financial assistance to those in need of equipment and/or supplies. The Patient Care Fund is available to all residents of Miami-Dade, Broward, Monroe and Palm Beach County diagnosed with ALS
http://www.alsrecovery.org/
ALSpatientservices.html Les Turner ALS Foundation
The Les Turner ALS Foundation offers a variety of financial assistance to ALS patients and their families. This includes the Ralph Russo Patient and Family Services Grant Program, the Dan Nelson Respite Care Grant Program, loan banks for augmentative communication devices and durable medical equipment and the Stuart Rosen ALS Transportation Fund.
http://www.lesturnerals.org/
patient-services/grant- programs-and-equipment-loans/
NeedyMedsThis a 501(c)(3) national non-profit information resource dedicated to helping people locate assistance programs to help them afford their medications and other healthcare costs.
NeedyMeds’ mission is to be the best source of accurate, comprehensive and up-to-date information on programs that help people facing problems paying for medications and health care; to assist those in need in applying to programs; and to provide health-related education using innovative methods.
NeedyMeds is funded by small grants, donations, sponsorships, subscriptions to PAPTracker, and syndication of some of our database information. NeedyMeds also works with the patient assistance programs of several pharmaceutical distributors.
http://www.needymeds.org/
copay_diseases.taf?_function= summary&disease_id=151& disease_eng=Amyotrophic% 20Lateral%20Sclerosis&dx=18& drp=als HealthWell Foundation
The HealthWell Foundation reduces financial barriers to care for underinsured patients with chronic or life-threatening diseases.
http://www.
healthwellfoundation.org/ healthwell-and-needymeds-drug- discount-card
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