Were YOU on the List? What could you do to help others stay OFF the Misdiagnosed List?

[Amanda]

ALS is often misdiagnosed as we’ve discussed. This list contains many of the illnesses/diseases that ALS is often confused with by medical professionals.  Myasthenia gravis Lambert-Eaton myasthenic syndrome Lyme disease Carpal tunnel Poliomyelitis and post-poliomyelitis Heavy metal intoxication Kennedy syndrome Adult-onset Tay-Sachs disease Hereditary spastic paraplegia Multifocal neuropathy Cervical spondylosis or extramedullary tumor with compressive radiculopathy and myelopathy Inclusion body myositis Progressive bulbar palsy Progressive muscular atrophy Motor neuron syndromes with lymphoproliferative disorders or other malignancies (e.g., lung, breast) Thyrotoxic myopathy Were you misdiagnosed?  Did you have surgery or any other invasive procedures? If yes, what were your initial diagnoses, and do you believe the treatment impacted your ALS?   After your experience, what would you do differently?  Would you ask different questions? Would you seek different professionals? What advice can you offer others who may be in the beginning stages and seeking an initial diagnosis?

[Author]

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