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  • What research do you plan on following in 2026?

    Posted by Amanda on December 23, 2025 at 10:47 pm

    As 2026 approaches, what ALS research are you the most interested in? Are you hopeful that research is getting closer to treatments and/or a cure for ALS?

    Dagmar replied 2 weeks, 1 day ago 2 Members · 1 Reply
  • 1 Reply
  • Dagmar

    Member
    January 6, 2026 at 2:55 pm

    For those with genetic ALS, there has been quite a lot of research news. And I believe it will continue through 2026. However, for those of us with sporadic ALS, the advancements have been dismal. We are still in the beginning stages; laboratory tests, mouse models, Phase 1… followed by not-so-stupendous results. I’m not being negative, only being a realist. This is about the same stage that research was in when Iwas diagnosed 16 years ago. I’ve learned not to pin my hopes on an imminent cure, waiting with bated breath. But to focus instead on the quality of my life right now and how I can help other ALS patients.

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