[ann-thomson]

What are good brands for Tudca and other supplements?

[ann-thomson]

I would love it if you had a virtual meeting. I’m a cALS to my husband Jim who is completely nonverbal and can’t move.

[ann-thomson]

I feel so helpless. My husband is failing quickly. I might be grasping but was wondering if anyone takes curcurmin and is so what dosage and brand!!!Help
❤️

[ann-thomson]

Thank you for your suggestions. I am going to give him Aleve PM tonight.

[ann-thomson]

I am getting worried too. My husband has an ALS clinic appointment in 2 weeks and I am afraid it’s going to get canceled. He hasn’t seen the ALS team in person yet. I pray we make it there ???

[ann-thomson]

How do you get involved in trials? We live so far from them. I want my husband on a trial but I don’t seem to get to the right people.

Ann

[ann-thomson]

Is it too late to apply for the 3rd trial?  How do you go about signing up ?

[ann-thomson]

The hardest thing for me is feeling so helpless watching my husband struggle to eat, to drink and to walk. Just as Amy said, my husband was the bill payer, the handyman, the person I always leaned on. Now he can’t do any of that and I know it’s very selfish for me to say but it’s all in my court now. I miss my beautiful husband. I am so thankful he is with me. I’m so scared for the future.

[ann-thomson]

Thank You for all your wonderful advice. So far we are going to stay in our home. My kids are going to help us out with the lawn.

[ann-thomson]

Thank You so much for all of you and thank you for your advice.

[ann-thomson]

My husband has ALS. When I told my family and our friends, everyone was shocked but I thank God that they are all so supportive.

[ann-thomson]

Thank You for your quick replies. I think my husband should go on Radicava. We go to Doctor in Aug I will talk to him then.
Thank You again for your feedback
Ann

[ann-thomson]

I love this site. As a Wife if a Pals I need so much advice for caregivers. I find myself always watching my husband and asking him if he’s ok. I don’t want him getting aggravated with me. My heart breaks for him and all that have this horrible disease.
I wish I could get him on this forum. Jim would love it. He’s always been a talker but the ALS has attached his speech and now he hardly talks.

[ann-thomson]

My husband was do this past June. His Neurologist immediately put him on Riluzole but doesn’t believe in Radicava. What is your opinion? If it slows down the symptoms I want him to go on it

[ann-thomson]

Thank You for all your advice. I Do know we need to make some big decisions but you’re right. I need to approach him slowly. He really doesn’t talk to me about his illness and therefore I keep it to myself. We have a very strong marriage and a big family. We will take each day, be thankful to our Lord for giving us this day and count our blessings.
Thank You for your kindness. God Bless you and your husband.

[ann-thomson]

You speak so beautifully. How do I get that Goggle app for my husband Jim.
I love the flash briefings and I love this forum. Thank You so much.

[ann-thomson]

I love listening to the flash briefings. I have a hard time stopping my day to read so the news flash briefings fit the bill. I have my AirPod in one ear all day so I am hands free .  I just wish there were more. I wish alsnewstoday was in audio too.