AB Science will suspend its ongoing masitinib studies in France in patients with cutaneous mastocytosis. However, its studies in patients with amyotrophic lateral sclerosis (ALS) can continue. The pharmaceutical company said it received notice from the French medicines agency Agence Nationale de la Sécurité des Médicaments,…
A gene therapy aimed at strengthening the connection between motor neurons and muscle prevented nerve degeneration and increased the life span of mice with amyotrophic lateral sclerosis (ALS), a study showed. Since researchers believe that neurodegeneration in ALS starts at the junction between nerves and muscle, the findings suggest that…
If you’re active on the Internet, particularly in groups and forums regarding chronic illness, you’ve definitely noticed the term “spoonie” being thrown around. MORE: Six tips to help you manage ALS. Spoonie is a term coined by a chronic illness blogger, who used spoons to demonstrate…
More than 260 Dutch Bros. Coffee locations in seven American states have raised $970,037 for the Muscular Dystrophy Association‘s patient-services and research programs, which include ALS, the disease that claimed Dutch Bros. co-founder Dane Boersma. To honor Boersma, the company calls its annual fund-raiser Drink One for Dane Day. In addition…
In this video from Eugene Speech-Language Therapy LLC, Eugene explains some of the ways that a speech-language therapist can help those who suffer from amyotrophic lateral sclerosis (ALS). MORE: Researchers use Hollywood technology to track ALS speech changes. She shares that speech therapy can help…
This video from Nature Video discusses the neurons behind amyotrophic lateral sclerosis (ALS). The narrator explains that ALS is a neurodegenerative disease that usually begins in adulthood and progresses rapidly. MORE: Sixteen fast facts about ALS. The disease is characterized by the loss of both upper and lower motor neurons,…
The 6th annual Roll on Capitol Hill, organized by the United Spinal Association, will advocate for greater access to properly configured and medically-necessary wheelchairs for people with spinal cord injuries and disorders (SCI/D). The event will take place from June 11-14 in Washington, D.C. Andrea Dalzell, Ms. Wheelchair New…
Researchers have developed an antibody, called armanezumab, which specifically targets defective tau protein. The molecule has potential for the treatment of amyotrophic lateral sclerosis (ALS), among other diseases. According to results of the study “Humanized monoclonal antibody armanezumab specific to N-terminus of pathological tau: characterization and therapeutic potency,”…
The first treatment for amyotrophic lateral sclerosis (ALS) in more than two decades, Radicava (edaravone), has been approved by the U.S. Food and Drug Administration and will soon be available to patients. The May 5 FDA decision, hailed by physicians and ALS advocates, brings hope to the ALS community that treatment development, after a…
Motor neuron disease (MND) is a condition where nerve cells (motor neurons) in the brain and spinal cord stop working, damaging the nervous system and leading to muscle wastage. It’s also referred to as amyotrophic lateral sclerosis (ALS). MORE: 16 fast facts about amyotrophic lateral sclerosis. According to the…
