It’s time to fill the balloons, hang the streamers, and invite our friends and family to join us for a summer full of fun ALS awareness events! Did you know that we’re also celebrating 32 years since May was designated as ALS Awareness Month and that 2024 is…
Looking back on the progress (really) in ALS awareness
The ALS Multidisciplinary Clinic at the University of Cincinnati Gardner Neuroscience Institute in Ohio has been gifted $13.5 million to advance its research and patient care initiatives related to amyotrophic lateral sclerosis (ALS). The donation comes from the estate of Hugh H. Hoffman, who earned a degree from the…
The Tambourine ALS Breakthrough Research Fund has committed more than $5 million in funding to eight research projects aiming to better understand, diagnose, and treat amyotrophic lateral sclerosis (ALS). A first call for proposals was launched in May 2023 by Tambourine Philanthropies, a charitable foundation established by…
Among the various problems of life that families experience is the occasional exclusion of children from conversations. I remember hearing the older members of our family saying, “This is grown-folks’ business.” They’d tell us children to go outside and play. Depending on the age of a child, that might…
A blood biomarker of oxidative stress, a type of cellular stress implicated in amyotrophic lateral sclerosis (ALS), is significantly increased in ALS patients and its levels seem to correlate with disease progression and survival. That’s according to a recent analysis of study data from Coya Therapeutics, with the…
I make lists to keep track of everything I need to do in addition to taking care of my husband, Todd, who has ALS. Make an appointment to have the snowblower removed from the tractor and the bucket put on. Get the snow tires swapped out for summer…
Scientists at Stony Brook University aim to create a caregiving robot assistant (CART) to help people with amyotrophic lateral sclerosis (ALS) and their caregivers with everyday tasks. Led by I.V. Ramakrishnan, PhD, a professor of computer science and associate dean at the university’s College of Engineering and Applied Sciences,…
May marks amyotrophic lateral sclerosis (ALS) awareness month, a time dedicated to raising awareness about ALS and answering the call to support those affected by the neurodegenerative disease. In the U.S. and internationally, baseball games, conferences, flag raisings, and community events are held during ALS Awareness Month to honor…
“It was easy, fun, and I’d do it all over again.” I know those are not the typical words used by someone who just finished participating in a research study, especially one focused on ALS. But that’s exactly how I felt last week when I pressed the submit button…
Having possible symptoms of amyotrophic lateral sclerosis (ALS) increases the chances of getting an ALS diagnosis by nearly five times, but getting diagnosed is more likely for people in urban areas, who have greater access to specialized care, a U.S. study shows. People in rural areas are diagnosed at…
Recent Posts
- New funding backs commercial readiness efforts for ALS therapy
- US lawmakers reintroduce bill to improve access to treatment for ALS
- An emotional dance performance mirrored my life with ALS
- Expanded access program for ALS drug MN-166 at 50% enrollment
- US clinical trials lack diverse representation of ALS patients