We must each find our own way as we learn to live with ALS

I originally planned to write this week about the small ways I’m maintaining my mobility and muscle strength while living with ALS. However, I waffled back and forth about whether this was a suitable topic. My hesitation wasn’t because my observations were unreliable, but because I worried readers might…

Higher blood levels of the pollutant hexachlorobenzene (HCB), once widely used as a pesticide and later restricted in many countries due to concerns about toxicity, may increase the risk of developing amyotrophic lateral sclerosis (ALS), according to data from people living in two cities in Denmark. In contrast, most…

Swallowing difficulties are a common challenge for people with amyotrophic lateral sclerosis (ALS) and may place a substantial burden on patients during hospital stays, according to an analysis of a large U.S. database. The study found that about one-third of hospitalized ALS patients experienced difficulty swallowing (dysphagia), and…

Two blood markers indicative of inflammation and cellular stress may help predict disease progression patterns and survival in people with amyotrophic lateral sclerosis (ALS), a study found. Higher levels of these two markers, LBP and 4-HNE, “were correlated with a more rapid disease progression rate, shorter survival, and [worse…

Caregivers across Canada can now access free professional mental health support specifically tailored to the unique challenges of caring for people with amyotrophic lateral sclerosis (ALS). Expanding on a successful pilot project launched in Ontario last year, the ALS Society of Canada (ALS Canada) is rolling out a…

I left my husband, Todd, at home in Michigan last week while I flew with our teenage son to Florida during his spring break. Getting away takes planning and requires a lot of help at home while I’m gone. For me to be able to leave, we had to assemble…

Advocates and lawmakers are racing against a looming September deadline to prevent a “funding cliff” for critical amyotrophic lateral sclerosis (ALS) research and treatment access. The ALS Association is now throwing its full weight behind the newly reintroduced ACT for ALS Reauthorization Act (H.R. 8205), a bipartisan push…

Some days, my life with ALS feels like I’m trying to force a square peg into a round hole. On second thought, forget “some days” — I feel that way almost every day. There are the small irritations, such as having to wrestle with uncooperative Velcro on my…

Shionogi has completed its acquisition of global rights to Radicava and Radicava ORS, two edaravone formulations approved to treat amyotrophic lateral sclerosis (ALS), from Tanabe Pharma, finalizing a deal announced late last year. When it signed the agreement, Tanabe said it would establish a U.S.-based company to…

A large-scale genetic analysis has identified several new rare mutations linked to amyotrophic lateral sclerosis (ALS), with findings suggesting that about a quarter of patients have an identifiable genetic contributor to their disease, according to a new study. The results, which come from an analysis of nearly 18,000 people…