Abnormal levels of certain fatty molecules in the body — which are broken down by metabolism to support daily functions —may increase the risk of amyotrophic lateral sclerosis (ALS), according to a new study. The research, which was based on genetic data to reduce the influence of external factors,…
Higher levels of certain fat molecules in the body may increase ALS risk
My brother and his family visited from out of town for a few days, so I planned a couple activities away from home and hired a caregiver for my husband, Todd, who has ALS and is paralyzed. Now that his neck is very weak and he needs noninvasive…
Even though I know my brain is in charge, there are days when my body seems to have a mind of its own. When that happens, I remind myself that my body is not the enemy. In fact, there is no enemy at all — just me, misunderstanding my…
People whose amyotrophic lateral sclerosis (ALS) begins with speech and swallowing problems, known as bulbar onset, are typically diagnosed about four months sooner than those whose disease begins with arm or leg weakness, known as limb onset. That’s according to a pooled analysis of data from 13 studies across…
Before my daughter, Marissa, was diagnosed with ALS in September 2022 at age 30, I was convinced that her symptoms could be attributed to anything except ALS. Denial made it hard to accept reality. Since then, my world has been turned upside down. Early in 2022, Marissa began experiencing…
Neurosense Therapeutics announced that it’s preparing a new drug submission to Health Canada — following a meeting with the regulatory agency — to seek approval of PrimeC, its combination therapy for amyotrophic lateral sclerosis (ALS), in the North American nation. During that meeting, the U.S. biotech company presented…
The U.S. House of Representatives has passed legislation that would renew the ACT for ALS, a landmark federal law that supports amyotrophic lateral sclerosis (ALS) research and helps people with the disease access promising experimental therapies. The ACT for ALS Reauthorization Act (H.R. 8205) will now move to…
A stem cell therapy conditionally approved in South Korea for treating amyotrophic lateral sclerosis (ALS) will remain available in the Asian nation despite failing to meet the main goal of a late-stage clinical trial that sought to confirm its effectiveness. Developer Corestemchemon announced that Neuronata-R (lenzumestrocel) will…
The Muscular Dystrophy Association (MDA) brought its Engage Community Seminar to Hershey, Pennsylvania, on July 18, uniting individuals with neuromuscular diseases, caregivers, and medical experts for a day of education and connection. Hosted in collaboration with the Penn State Health Milton S. Hershey Medical Center, the one-day event featured a…
Of all the scenes that stay in my mind from my late husband Jeff’s time with ALS, this is among the most enduring: Jeff, wearing a Navy baseball cap and a weathered T-shirt, sitting behind the console of a rented pontoon boat as he navigated the waters of the…
Recent Posts
- From clothing to handwriting, I’m still adapting to ALS and cultural change
- Better cardiovascular health linked to lower ALS risk in large study
- Common viral infections may lead to faster ALS progression, study suggests
- ALS community mourns Brooke Eby, who shared her journey with millions
- MDA Engage: ‘I am not alone’ was the biggest takeaway in Chicago