ALS Nexus 2026: Implantable device decodes patients’ brain signals

An experimental implantable device from Precision Neuroscience enabled computers to decode brain signals to predict movement and speech, which could eventually help create assistive devices for people with amyotrophic lateral sclerosis (ALS). That’s according to findings from preliminary tests conducted in patients undergoing routine neurosurgical procedures, which were…

People with diabetes may be less likely to develop amyotrophic lateral sclerosis (ALS) than those without diabetes, according to findings detailed in a poster presented at the ALS Nexus conference. The study also found that people with a longer reported duration of diabetes and those receiving insulin as…

The ALS Association has awarded Mitochon Pharmaceuticals a $1 million grant to support a Phase 2 clinical trial testing the company’s experimental therapy MP-101 in people with amyotrophic lateral sclerosis (ALS). The study is still in the planning stages and is expected to kick off next year.

Higher levels of physical activity were associated with a lower risk of developing amyotrophic lateral sclerosis (ALS) in a large U.K. study. The association was seen using both self-reported activity questionnaires and objective measurements from wrist-worn devices called accelerometers. Among participants with known genetic risk factors for ALS,…

Nine years ago, and seven years into my husband Todd’s ALS journey, we were still trying our best to get out and have a normal life. That fall, our 8-year-old son came home from school with a flyer from a local church. They were hosting a Harvest Festival and…

A modified frailty index based on five self-reported health measures may help identify people at higher risk of developing amyotrophic lateral sclerosis (ALS), according to a new study. The model, which included falls, whole-body pain, long-standing illness or disability, self-rated health, and tiredness or lethargy in the previous two…

While scrolling through social media the other day, I came across a question that stopped me in my tracks: How has having ALS impacted your life for the better? I scanned the replies and thought to myself, “It all depends on which chapter of my ALS journey you’re asking…

Stem cell therapies are generally safe and well tolerated in people with amyotrophic lateral sclerosis (ALS), and preliminary evidence from clinical trials suggests they may also help slow functional decline, according to a systematic review and meta-analysis of several published studies. Researchers found that people given stem cell therapies…

Loneliness and regret are key drivers of mental health distress among people with amyotrophic lateral sclerosis (ALS), according to a new survey — but the researchers also found that maintaining a hopeful outlook may help those with the rare disease to combat anxiety, depression, and frustration. The survey,…

Researchers, physicians, industry partners, caregivers, and people with amyotrophic lateral sclerosis (ALS) are gearing up to gather for the third annual ALS Nexus conference, an effort from the ALS Association to bring the ALS community together around a shared goal of changing the future of ALS. The…