Demystifying ALS: Separating fact from fiction
Whether you have been diagnosed with ALS or are a caregiver, it’s important to know the facts. Here are some common myths about the disease and the truth about each claim.Â
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Don’t delay: Unpacking the benefits of early ALS intervention
A multifaceted care and treatment approach started as soon as possible after an ALS diagnosis can help maintain independence for longer and improve quality of life for both those with ALS and their caregivers.
Power of persistence: Navigating complex ALS treatment plans
Understanding how your ALS treatment plan evolves over time with the progression of the disease will enable you and your caregivers to make informed decisions about your care.
Insurance and financial resources for ALS treatment
Financial planning can help with managing expenses related to living with ALS, so you can focus on your health and well-being. Working with a financial adviser or navigator can help you find health insurance, along with financial assistance programs.
What do we do when ALS caregivers become injured or sick?
It’s been more than four years since I was a caregiver for my late husband, Jeff, who died of ALS in May 2020. Caring for Jeff is the hardest and scariest thing I’ve ever done, a fact that took me years to acknowledge out loud because I believed that…
ALS patients treated by neurologists receive better care: Medicare study
People with amyotrophic lateral sclerosis (ALS) who are treated by a neurologist are more likely to receive evidence-based care endorsed by the American Academy of Neurology than those who see non-neurologist providers, according to an analysis of Medicare data. Still, fewer than half of the ALS patients studied…
Finding purpose in parenting with ALS
After my husband, Todd, was diagnosed with ALS at age 39, he grieved the loss of his career and struggled to find a sense of purpose. When he was healthy, he’d hoped to take on new roles with his company and advance in management, but all of that became…
ALS scholarship program to help students who have lost parents
The nonprofit organization ALS Northwest has partnered with the Oregon State Treasury to establish a college scholarship program through the state-administered Oregon College Savings Plan for students who have lost parents or guardians to amyotrophic lateral sclerosis (ALS). ALS Northwest will administer the Elinore Nudelman ALS College…
Tiziana seeks ALS Association grant to test foralumab for ALS
Tiziana Life Sciences has applied for a grant from the ALS Association to fund an early-stage clinical trial testing intranasal foralumab as a potential therapy for amyotrophic lateral sclerosis (ALS). The association invited the company to apply for the grant, which is offered under the Hoffman…
Eli Lilly to develop, market ALS therapy for UNC13A function
Eli Lilly has acquired the global exclusive rights to develop and market QRL-204, QurAlis’ investigational therapy for amyotrophic lateral sclerosis (ALS) and frontotemporal dementia (FTD) that’s designed to restore UNC13A function in nerve cells. UNC13A is an essential regulator of neurotransmitter release at synapses, a key process…