Showing 2745 results for "amyotrophic lateral sclerosis (ALS)"

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School psychologist with ALS finds balance, joy with job

Amanda Sifford shares her experience working as a school psychologist while living with amyotrophic lateral sclerosis (ALS). She reflects on workplace support, self-advocacy, and the importance of finding joy and balance through the challenges of fatigue and disease progression.

An author discusses ALS and how she became an activist

Mindy Uhrlaub, an author and activist for amyotrophic lateral sclerosis (ALS), has spent a good part of her life caring for loved ones. Soon after she became a mom in 2003, her husband learned he had cancer. “Right as my older son was taking his first wobbly steps, my…

Ask the expert: Al Freedman on social isolation and ALS

Al Freedman, PhD, a psychologist who specializes in rare disease communities, discusses how to manage social isolation while living with amyotrophic lateral sclerosis (ALS). He shares his background as a father to his late son Jack, who had spinal muscular atrophy (SMA), and how his role as a caregiver has…

Zydus’ usnoflast wins FDA’s fast track drug status for treating ALS

The U.S. Food and Drug Administration (FDA) has granted fast track status to usnoflast, Zydus Lifesciences’ experimental oral inhibitor, for treating amyotrophic lateral sclerosis (ALS). The designation is meant to accelerate the development and review of new therapies that address unmet medical needs in serious or life-threatening conditions, and…