More than 5,000 people are diagnosed with amyotrophic lateral sclerosis (ALS) each year, and the out-of-pocket costs of care are an estimated $250,000 for each person with the disease, according to the ALS Association. These are just a couple of the statistics about ALS that advocates, organizations, and…
Cytokinetics has awarded a total of $100,000 to five nonprofit patient advocacy organizations to support efforts to enhance communications, increase disease awareness, and boost community engagement. Recipients of the fourth annual Communications Fellowship Grant Program include the Les Turner ALS Foundation, the Northern Ohio Chapter of The…
National Amyotrophic Lateral Sclerosis Awareness Month, recognized in the U.S. each May since 1992, continues to unite patients, family, friends, and advocacy groups around shared goals of raising public awareness and research support. This year’s efforts continue to recognize and support those living with…
At the time of his stunning 2015 amyotrophic lateral sclerosis (ALS) diagnosis, Ed Rapp was a veteran Caterpillar executive who had worked and lived around the world. Since being diagnosed, Rapp has directed his efforts toward ALS advocacy. Those efforts will be recognized on Feb. 22, when he…
Kip Fontana was diagnosed with amyotrophic lateral sclerosis (ALS) in 2010 and was told by his doctors that he had between three and seven years to live — but Kip had different plans. Seven and a half years later, he has just competed in his first 5K race. MORE: Living with…
The Les Turner ALS Foundation had about 7,000 people on more than 200 teams support those affected by amyotrophic lateral sclerosis (ALS) at the Les Turner ALS Walk for Life, held Sept. 18 in Chicago. The Les Turner ALS Foundation was founded in 1977 to support research, patient care, and education about…
Amyotrophic lateral sclerosis (ALS) is a disease that progressively shuts down your muscles by attacking certain cells in the brain and spinal cord needed to keep our muscles moving. Eventually, patients will lose their mobility, have trouble moving, walking, swallowing and even breathing. In this video, shared by …
In this ALS Association video watch specialists in ALS care explore the choices available for respiratory support. Learn more about ALS here: https://bit.ly/ALSNewsToday ALS News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is…
https://www.youtube.com/watch?v=emZjNcD484E In this Comcast NewsmakersIL video, learn more about the Les Turner ALS Foundation. “Since 1977, the Les Turner ALS Foundation has been Chicagoland’s leader in patient services, research, and education for Amyotrophic Lateral Sclerosis (ALS). The foundation serves nearly 90% of people living with ALS in the Chicagoland…
In this video, get to know more about the work of the Les Turner ALS Foundation. Learn more about ALS here: https://bit.ly/ALSNewsToday …
