Notes From the ALS Front - a Column by Rick Jobus

About a year ago, I wrote about how ALS patients may receive home healthcare on an uninterrupted basis, with expenses covered by Medicare. Since then, there has been both good news and bad news. The good news is that I recently “celebrated” my two-year anniversary of getting that coverage.

Awareness Breeds Compassion. Compassion Drives Enhanced Funding. Funding Generates Heightened Innovative Intervention Ideas. It all starts with awareness. May is ALS Awareness Month. It is not a coincidence that I chose three words beginning with the letter “I.” I believe that a single measure of awareness yields…

A zero-sum game is a situation in which the accumulation of gain is accompanied by a sum of loss of equal value. The net result is always zero. From the get-go, ALS seeks to make that outcome an impossibility. It strives to force a plunging and irreversible deficit. In the…

“If anything can go wrong, it will.” — Murphy’s Law That adage could be the ALS anthem. From the onset of mysterious symptoms to the serpentine-like diagnostic process and worst-case outcome, and by watching your body unfailingly obey his maxim, the prophet Murphy is seemingly ever-present. The…

*** Instant Karma’s gonna get you, Gonna knock you right on the head, You better get yourself together, Pretty soon you’re gonna be dead. — John Lennon *** One of the dictionary definitions of karma…

“It’s hard to make predictions … especially about the future.” –Yogi Berra Gamblers and non-gaming speculators fervently seek out “sure things.” In the absence of that, both groups attempt to identify situations where probability weighs heavily in their favor. Some may conspire to unscrupulously influence the odds in…

“I think, therefore I am.” I have long been fascinated by that argument of philosopher Rene Descartes. Similarly, over a millennium earlier, St. Augustine wrote, “I make mistakes, therefore I am.” Both suggest that cognition — self-awareness in Descartes’ case, knowing right from wrong per St. Augustine —…

“Youth is wasted on the young.” That quote, often attributed to playwright George Bernard Shaw among others, may on the surface appear paradoxical. However, to me its meaning is clear. When we are young and in our physical prime, both the slate of options for physical…

“She put me through some changes, Lord, sort of like a Waring blender. Poor, poor, pitiful me. Poor, poor, pitiful me.” –Warren Zevon *** The other day while I was ruminating about the burdens that ALS imposes, a call of nature provided an intervention of…

“If we’re treading on thin ice, then we might as well dance.” That is a line from a song, “Do It,” on Jesse Winchester’s second album, “Third Down, 110 to Go.” The album’s title depicts an impossible situation. The referenced lyric prescribes a nonchalant, if not joyful,…