• Awareness and Advocacy

  Get Involved!

  Posted by Amanda on February 18, 2020 at 8:48 pm

  

  Did you know that the FDA wants pALS and their caregivers to be actively involved determining the course of research and treatment. An article recently published in ALS News Today https://alsnewstoday.com/2020/02/11/fda-patient-engagement-initiatives-focus-nord-webinar/ provides you with information about several programs that may be of interest to you!  Since Rare Disease Day is just around the corner, this may be an option for you to get involved. Take a look at the article and share your thoughts.

  What do you think about patient consultants? Do you think that pALS and caregivers can help shape the direction of research, treatment and/or clinical trials?

  Amanda replied 4 years, 11 months ago 1 Member · 0 Replies

  • ALS
  • ALS advocacy
  • ALS research
  • RARE Disease Day
  • WE ARE RARE
• 0 Replies

Log In to Reply