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I started QALSody on July 12, 2023. I noticed small changes in about 4-6 months. Sometimes I would just tell myself it was a good day so that I didn’t get my hopes up. Then I had a lot of good days, and more great days! I’m nowhere near my physical self before ALS, but I am working and independent. I’m slow, I get exhausted very quickly, I can’t always complete my chores without help – moving the washing machine, yard and house work….I can’t run, jump or hop but I don’t want to run, jump or hop 🙂
As for my attitude, I’m not sure how I stay positive. In part it is because I know how important a positive attitude is to my health. I’m single and I don’t know how I would survive if I had lost the ability to walk or something impeding my independence. I don’t really know how positive I would be under those circumstances. I hope that the treatment continues to work and I don’t have to find out. I also hope that I can maintain positive attitude if and when I do decline. I have such great friends, I love both of my jobs (Here, and as a school psychologist), where I live…..my life is very good. I can say when I was diagnosed, I promised myself I would wake up and account for all the good things in my life. Starting the day off like that helps. If you ever want to talk about ALS, the treatments or anything related let me know! I will definitely make the time. By the way, the treatments aren’t as bad as they sound 🙂 I’ll be thinking of you tomorrow. Best of luck!
Amanda