ALS C9ORF72

[Jean-Pierre Le Rouzic]

> C9ORF72 study was rejected by the ethics commission in Germany.
Which study?
Do you have a link or a clinical trial number?

Otherwise my feeling is that a quiet life, without drugs/alcohol/intense sports with good organic food and a good diet (pALS need much more energy while they are still able to move), is probably something which makes sense.

[Jörg Dimmeler]

The study should have taken place in the University Clinic Tübingen on behalf of the company Wave

[Jörg Dimmeler]

https://ir.wavelifesciences.com/news-releases/news-release-details/wave-life-sciences-announces-initiation-dosing-phase-1b2a-focus

 

[Jean-Pierre Le Rouzic]

> This link tells that a new clinical trial is starting, it does not tell it is stopped?

[Jörg Dimmeler]

The responsible ethics committee has again not approved the study at the current point in time, despite the previous detailed objection letter. The main point here is the argument of the responsible ethics committee that placebo control of the study is not permitted.