-
ALS Diagnoses
We’ve posted topics on how difficult it is to get an accurate ALS diagnoses in the past. Some of our members have shared the process they went through to find out they have ALS; but this is an important topic and I think many of our new members might find our members helpful.
As many of our members have experienced, the road to a correct ALS diagnoses often long and winding. Many people are diagnosed with something such as MS, carpel tunnel or numerous other diseases when in fact they have ALS. According to the World Care website https://www.worldcare.com/2017/04/19/misdiagnosis-als/
10% to 15% of people are told that they have athey have ALS when they have another condition; and 40% are told they have something other than ALS, when it is in fact ALS. (These stats vary a little from site to site).
We know that there is not a single definitive test that neurologist can use to diagnoses ALS. The do many test and go through the rule out process.
Some of the latest research and articles are offering hope for better and quicker diagnoses using MRIs, genetic testing and using biomarkers.
pALS members, what was the process like for you? How long did it take to get an accurate diagnoses. Do you think your diagnoses is correct? What advice would you give to newly diagnosed pALS and thier families? What resources have provided you with suport?
Log in to reply.