• Diana Belland

    April 16, 2019 at 8:40 pm

    Yes! I signed up thanks  to Dagmar’s latest post in her Living Well With ALS column today.  I had been putting it off but I decided to tackle it today after reading her column. Signing up is simple and the surveys are short.  Many of the survey questions seem to be aimed at gathering data that might point to possible environmental factors in triggering ALS.   The survey questions about coffee and caffeine really surprised me, though…How might heavy caffeine consumption play a role in motor neuron disease, I wonder?   I do love my coffee!

  • Amanda

    April 21, 2019 at 5:05 pm

    Thank you Diana!  I truly believe that the ALS Registry will be beneficial for researchers.  Dagmar’s article was wonderful and I hope she inspires other members to register too.

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