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      Dagmar Munn

      ALS support groups provide many benefits for patients and caregivers alike. The group is a safe and confidential space to share problems, issues, useful ideas, and even humorous moments. And they are educational: Many support groups have guest speakers from time to time sharing new developments in ALS-specific areas or related fields. By building camaraderie among members, support groups can also help dissipate the feelings of isolation that often arise from living with a rare disease such as ALS. The ALS Association sponsors meetings in almost every state, and even if you can’t travel to a support group, online access is often available.

      Do you attend a local ALS support group? If so, how has it helped you? If you don’t attend one, why not? What is holding you back? Here are a few of my experiences with support groups. Share your opinion and experiences with us in the reply section below.

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