• Diagnosis​ ​Information​ ​and​ ​General​ ​Questions

  ALS TRIALS

  Posted by Peter Powell on February 28, 2020 at 5:47 am

  Hi, I’m seeinG my specialist next Friday the 6th March and they are asking me to sign up for a CNM-Au8 study over 40 weeks to slow progression of ALS.

  Whilst I am super keen to participate in any trials, half the participants will be given a  placebo.  I am really keen to trial the new drug, but not keen to “waste” 40 weeks drinking coloured water.   So if the trial is successful, then in my view I am 40 weeks behind receiving the treatment that might help me.

  I understand the necessity to compare recipients with placebo’s , however being selfish, is there anything I can do to request the “real” treatment? Keen to get your thoughts!

  Peter Powell replied 4 years, 1 month ago 1 Member · 0 Replies

  • CNM-Au8 Trial
• 0 Replies

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