“I never imagined I would be providing this type of care for my middle-aged husband,” is something Kristen Neva wrote in her recent column: We Are Both Patients. In it, she shares how caregiving for her husband who has ALS, is stressful for both of them, but their strong relationship helps them through the tough times.
She also wrote: “Caregiving takes a physical toll on my body, so I try to take care of myself as much as possible so I can keep functioning in the long term for Todd and our kids. And that’s where his patience comes in, in understanding that I have limits.”
As a caregiver, do you and your pALS have an agreed-upon signal to let each other know it’s time for you to take a break? What do you do to take care of yourself? What tips can you share with our caregiving members?