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The CDC provides information about ALS, treatments and clinical trials at https://www.cdc.gov/als/Default.html#:~:text=Amyotrophic%20lateral%20sclerosis%20%28ALS%29%2C%20sometimes%20called%20Lou%20Gehrig%E2%80%99s,is%20the%20only%20population-based%20registry%20in%20the%20U.S.
The website has a page for caregivers and pALS where you can learn more about the ALS Registry and sign up so that you can get updated information. https://www.cdc.gov/als/PatientsandCaregivers.html Has anyone in our community registered? Have you used this resource for anything? Was it helpful?
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