• richard-l-wheeler

    Member
    May 13, 2024 at 10:51 am

    I sent email but no reply.

  • Deleted User

    Deleted User
    May 13, 2024 at 11:01 am

    Richard, sorry, but I haven’t received your message until this one now.

  • Erin Dittoe

    Member
    May 14, 2024 at 12:26 pm

    I was hopeful of participation. Then realized, this like ALL Healy trials, are only open to those who are less than 36 months from symptom onset. Nice they are finally permitting virtual participation. Anyone else feeling like once 36 months has elapsed you have little hope of anything including seeing ALS as a livable disease?

  • NJGuy

    Member
    July 15, 2024 at 1:17 pm

    Hi all, hope you are doing well!

    I have seen some replies here mentioning good results from using the CNM-AU8 drug (gold nanoparticles). Some even mentioned gaining better strength. I would like to hear more from the pALS, seems like the CNM-AU8 drug is pretty promising.

    Thanks & best regards!

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