During the first few years of my diagnosis, my neurologist scheduled me to see her at the ALS Clinic every three months. Some patients came in more often, especially when they were experiencing increased symptoms of ALS. I am fortunate that my symptoms are progressing slowly and I’m now on a every four-month schedule.
How often do you see your neurologist? Do you think it is often enough, or too much? I’m also interested in hearing from pALS who live outside the U.S.