ALS News Today Forums Forums Living With ALS Is There Such a Thing as Too Much Information?

  • Is There Such a Thing as Too Much Information?

    Posted by Amanda on March 28, 2022 at 8:55 am

    When I first learned just how prevalent ALS was in my family, I read everything I could about ALS. At that time, in the early 2000s, there really wasn’t that much information available.  I went through phases where I needed to stop and not think about ALS, or the possibility of having ALS in the future. With a familial history like mine, that seems unlikely. So, I often ask myself, is there such a thing as having too much information?  Do we prepare ourselves by being informed of the possibilities and changes to expect; or do we overwhelm ourselves and bring on symptoms (or anxiety-related illness).

    What do you think?  How do you balance information intake? Do you think there is such a thing as information overload when it comes to ALS or do you believe it is better to be more knowledgeable and prepared?

    kris replied 1 year, 5 months ago 2 Members · 1 Reply
  • 1 Reply
  • kris

    March 31, 2022 at 3:11 pm

    <p style=”text-align: left;”>My husband and I need information to plan for the future and make decisions. I’m not sure there can be too much information for us. We have been very frustrated when the answer to our questions about what changes in my abilities we should be prepared for has been “everyone is different” which although true is not at all helpful. We understand timing may vary but based on the experience of our medical professionals with many pALS there are some changes that are likely.


  • duane

    April 1, 2022 at 11:24 am

    Kris, here is information that may help you. Although sometimes people progress slowly, sometimes very slowly. There really is no way of knowing how it will effect you until it does.

    The The ALS Association is a reliable source of information. 

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