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    • #12790

      Parent and rare disease activist Gordana Loleska got her native North Macedonia to issue the world’s first Alport syndrome postage stamp. Read the full story here.

      Do you know of any other postage stamps that raise awareness for a rare disease? Would you like to see one for ALS where you live?

    • #12864
      Mirella Obreja
      Participant

      We want nurown we want to stay alive !

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