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    • #16214
      Dagmar Munn
      Keymaster

       

      There are no clinical trials currently testing the effects of acupuncture therapy for ALS specifically. Most of the information available about its potential benefits for ALS symptoms is from clinical case studies and Chinese literature. However, many ALS patients worldwide have tried or use acupuncture and feel it has helped them. Read more about acupuncture for ALS here.

      Massage therapy helps manage pain, strengthen muscles, ease joint stiffness and improve circulation, which all help to keep ALS patients as mobile as possible. Watch How to Perform Hand, Foot and Leg Massages for ALS

      Have you tried either of these bodywork therapies? How did they help? Would you recommend them to other pALS?

    • #16254
      Lee
      Participant

      Before the pandemic I got regular therapeutic massages once or twice a week, which helped a lot especially with muscle discomfort in my calves and thighs. I was diagnosed 3 years ago, but can still use my arms and legs pretty well. I try to walk twice a day. I used to be able to walk 2-3 miles each time, but am down to about 1 mile, and my leg muscles get tired and achy. The massages helped a lot with that. I will be glad when I can safely start getting them again. My therapist is open, but since I am 74 and at higher risk and I live with high risk people, I am going to wait a while longer before going back.

    • #16257
      Lee
      Participant

      I forgot to add in my previous post that the massages seemed to help with muscle twitching and cramps, at least for a while.

    • #16340
      Hashemih
      Participant

      My husband used acupuncture and massage, one day of needles and two days of massage per week, for three months without interest.

    • #16341
      Fran Finney
      Participant

      My husband had a fast progression – no speech, walking, or eating after one year, and a tracheostomy after two.  After he was first diagnosed, we started with daily massage at home (I am a Physical Therapist, have a massage table, and could do that for him.) We also invested in bi-weekly acupuncture. However, after about a year though, he asked to stop the acupuncture – it was fatiguing to be moved onto a treatment table, and did not help slow his progression. As he continued to progress he also asked me to stop most of the home massage, to only do his feet and legs while he was seated in his power wheelchair.

    • #16342
      Cate
      Participant

      I would like to have treatments like these, but the massage table is too high for me to get onto it. (I can walk but one arm has no strength and I am too weak to lift myself up.) Do you get sitting massages? Anyone have the massage therapist come to you? Same about acupuncture.

      Thanks.

    • #16345
      Dagmar Munn
      Keymaster

      Pre-ALS, I used to get a massage once a month to support my wellness – – I was extremely active and the massages were beneficial both physically and mentally. Post-ALS, I continued these for about a year… hoping the massage would help relieve my increasing muscle stiffness – – but sadly, I quit going. Like Cate, I could no longer climb onto the massage table and getting off of it became unsafe. Plus, the undressing and dressing were fatiguing and during the massage my body would get the chills.

      I would have enjoyed a back-neck-shoulder massage on a massage chair, but local massage therapists didn’t use them. Massage chairs for ALS massage (brought to the home or at the ALS clinic) are an untapped market for an enterprising massage therapist!

    • #16360
      Kim
      Participant

      Before my official diagnosis I tried acupuncture once a week for several months as I was advised that it might help with the nerve damage issue (they didn’t know I had ALS yet).  Although I liked it and found it very relaxing it did not help with any of my symptoms.  After my diagnosis and going to my local ALS Clinic, they signed me up for a Massage Grant (6 in home massages).  I was able to receive 3 of the massages just before COVID hit, then the massage therapist was no longer able to come in to the clients homes.  The massages were the Best!! They helped so much with the muscle cramping and joint stiffness.  Wish I could of continued them.  I too would not be able to climb up onto a massage table if I had to go to a massage place.  This therapist came to my home and was able to do them either from my couch/bed or even just doing a neck one while I was sitting in my wheelchair.  I wish our insurance company covered them.  I know some insurance companies do cover them but unfortunately ours does not.

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