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  • Medicare/Hospice Questions

    Posted by Misty Cicala on April 29, 2019 at 9:58 am

    I’m having issues with my husbands hospice provider. They want to discharge him from hospice services. When he was placed on hospice he was on a ventilator, and still is, and now hospice is wanting to discharge him due to his health has plateaued. Hospice said Medicare will not pay if there isn’t a decline in health. I called Medicare and was told if he is diagnosed with a terminal illness he qualifies for hospice benefits. We live in a small community hours away from a major city. If hospice discharges him we will be left without any services. Can anyone tell me where to go for help.

    My husband was diagnosed with ALS 5 years ago and on hospice for 2 years.

    Dagmar replied 5 years, 2 months ago 2 Members · 1 Reply
  • 1 Reply
  • Dagmar

    April 29, 2019 at 5:12 pm

    Hello Misty,

    The same issue came up in an ALS educational event that I recently attended. The advice was to notify your local ALS Association Care Coordinator who can communicate with your Hospice provider on your behalf. The Hospice provider should not be denying you services – – they are misinterpreting the rules.

    Here is a link to the ALS Assoc. Arizona Chapter:

    And the contact there:

    Amy Frank | Director of Care Services

    The ALS Association Arizona Chapter

    360 E Coronado RD, Suite 140 | Phoenix, AZ 85004 |

    (p) 602-297-3800 | (c) 480-229-2019 |  [email protected]

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