ALS News Today Forums Forums Using Our Forums Mid-month WELCOME new members – – Jul 15, 2023

  • Mid-month WELCOME new members – – Jul 15, 2023

    Posted by Dagmar on July 15, 2023 at 3:58 pm

    A mid-month welcome and opportunity to chat with our new members. So far, at this point in July, we’ve had 20 members join us!!

    • @sdboothe59
    • @dorseyr66
    • @bjc1180
    • @gislijonasson
    • @sarno01
    • @jamesb
    • @daisybenjafield
    • @williamwons
    • @michellemck
    • @matwater72
    • @kimberlydwolford
    • @art708
    • @nataliewatson
    • @kwikmik
    • @janetmdenton
    • @edando
    • @willy
    • @kkinneeii
    • @copper74
    • @sdboothe59

    Please feel free to introduce yourself! Here are some prompts to get you started, but feel free to tell us what you’re most comfortable sharing.

    Where in the world are you from?
    Do you have ALS or know someone who does?
    Are you on any treatments?
    What hobbies do you have?
    Do you have music preferences?
    If you could shout something from the rooftop, what would it be?
    Do you have any summer plans in place?

    We look forward to getting to know you!

    Oh, and for those of you who have been here a while, feel free to chime as well. Since this is a fairly new tradition, we’d love to get to know you better too!

    Dagmar replied 10 months ago 1 Member · 1 Reply
  • 1 Reply
  • Dagmar

    July 18, 2023 at 12:37 pm

    We welcome you and if you have the time, please tell us more about you.

    • michellemck

      July 18, 2023 at 4:00 pm

      Hi everyone,

      I was diagnosed with ALS on October 26, 2022.  I have the C9orf72 genetic defect.  My first symptom was an injured left hand (cycling accident) that never got better.

      I live just north of Toronto in Canada.  I’m taking Rilutek and Edovarone i.v.

      More recently I have had balance and mobility problems and a bad fall.  So now I am recovering from fractured (3) and broken (1) ribs.

      What would I shout from the rooftops- if I could get up there? LOL

      HAVE A BUCKET LIST?  Don’t wait. Act now!

      Hope you are all enjoying summer!




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