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    • #16323
      Dagmar Munn
      Keymaster

      For anyone who has felt frustration with the confusion of information about ALS clinical trials… here is a solution. Found on the IAM ALS website, ALS Signal is a user-friendly tool that shares information about global ALS clinical trials. Created by patients, caregivers, and advocates this unique tool includes the PaCTD rating system, multiple filters, and the US Trial Finder. It is the most complete up-to-date tracker by far of ALS clinical trials.

      Here’s the Link to: ALS Signal (https://iamals.org/alssignal/)

      If you need help or want to learn more, a webinar discussing the background and use of this tool is scheduled for:

      Wednesday, September 23, 2020 – 5:00 – 6:00 PM EDT

      Presented by: Nadia Sethi, Cali Orsulak, and Sandy Morris from I AM ALS 

      With an introduction and Q&A moderated by: Richard Bedlack, MD, PhD from the Duke ALS Clinic 

      https://www.neals.org/for-people-with-als-caregivers/educational-webinars/als-signal-and-pactd-patient-centric-tool

      Which clinical trials are you following? What do you think of this site? Has it been helpful for you?

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