ALS support groups provide many benefits for patients and caregivers alike. Pre-pandemic most groups met in person, but now group leaders utilize online sites like Zoom to hold their meetings.
Support groups are a safe and confidential space to share problems, issues, useful ideas, and even humorous moments. And they are educational: Many support groups continue to have guest speakers sharing new developments in ALS-specific areas or related fields. By continuing to hold online meetings, support groups can also help dissipate the feelings of isolation that can arise from sheltering at home during the pandemic.
Have you attended an online ALS support group? If so, how did it go? Was it helpful? If you haven’t tried an online group, why not? What is holding you back?
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