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    • #15428
      Marianne Opilla
      Participant

      Hello,

      Has anyone resumed/re-started any drug studies yet? My oral radicava study was put on hold before I could start March 30. Waiting to start over and it is frustrating since I am on a “decline”.  There are several different drug studies which were intended to run simultaneously around the time Covid hit. Wondering what other sites are doing?

      Thank you.

    • #15441
      Danielle Uskovic
      Participant

      Hi Marianne

      I’m in Australia and on a trial called Rescue ALS. It’s a double blind placebo trial. The drug is called CNM-Au8 (gold nanoparticles). I know from being on this trial when the pandemic hit that a lot of hospitals were told to cease all trials. I was fortunate that this study I’m on was given an exception and allowed to continue because it had already commenced before lockdown.

      Warmly Danielle

    • #15449
      Kathryn F. Kennedy
      Participant

      please keep me posted about this study.

    • #15451
      Marianne Opilla
      Participant

      My team is very excited about that drug. Glad you are able to participate and hope it proves to be something new to help us! Keep us posted! I hope to resume June 1.

    • #15454
      Danielle Uskovic
      Participant
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