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  • Platform Drug Studies

    Posted by Marianne Opilla on May 25, 2020 at 7:41 pm


    Has anyone resumed/re-started any drug studies yet? My oral radicava study was put on hold before I could start March 30. Waiting to start over and it is frustrating since I am on a “decline”.  There are several different drug studies which were intended to run simultaneously around the time Covid hit. Wondering what other sites are doing?

    Thank you.

    Marianne Opilla replied 4 years, 1 month ago 3 Members · 3 Replies
  • 3 Replies
  • Danielle Uskovic

    May 26, 2020 at 11:27 pm

    Hi Marianne

    I’m in Australia and on a trial called Rescue ALS. It’s a double blind placebo trial. The drug is called CNM-Au8 (gold nanoparticles). I know from being on this trial when the pandemic hit that a lot of hospitals were told to cease all trials. I was fortunate that this study I’m on was given an exception and allowed to continue because it had already commenced before lockdown.

    Warmly Danielle

  • Kathryn F. Kennedy

    May 28, 2020 at 4:29 pm

    please keep me posted about this study.

  • Marianne Opilla

    May 28, 2020 at 5:22 pm

    My team is very excited about that drug. Glad you are able to participate and hope it proves to be something new to help us! Keep us posted! I hope to resume June 1.

  • Danielle Uskovic

    May 29, 2020 at 6:14 pm

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