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Pre-fALS
Here is a link that tells a little about the pre-fALS study I’ve been in. This past May they started a clinical trials for pALS with a genetic SOD1 mutation associated with fast progression. https://physician-news.umiamihealth.org/miller-school-studies-pave-the-way-for-the-first-pre-symptomatic-als-trial-for-individuals-with-sod1-genetic-mutation/
What do you think about this line of research? Is anyone in the clinical trials that just started last month?
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1 Reply
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I read that the Biogen BIIB077 Tofersen trial is being extended to recruit pre-fALS candidates.
My son who is asymptomatic and carries the c9orf72 mutation is hopeful the same will happen with BIIB078 and Wave WVE-004. If they work, they may offer hope to our families.
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