• Living With ALS

  Rare Disease Day is 19 Days away!

  Posted by Amanda on February 10, 2020 at 5:32 pm

  We all know the ALS is RARE! In 19 days the World will embrace and celebrate Rare Disease Day. On February 29th, events will happen all over the world to bring attention to rare diseases like ALS. We encourage all of our members to take a look at this link, https://rarediseaseday.org/events/world and learn more about Rare Disease Day and how you can get involved! Please let us know what you think and if you plan on getting invovled.  And, don’t forget to start planning for ALS Awareness month in May.  The more we get involved the more we can advocate for change, including more research and funds dedicated to finding a cure.

  Amanda replied 4 years, 5 months ago 1 Member · 0 Replies

  • ALS
  • ALS advocacy
  • ALS research
  • RARE Disease Day
  • WE ARE RARE
• 0 Replies

Log In to Reply