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EverythingALS is looking for participants to help advance the research on ALS. For their project, they are recruiting individuals diagnosed or probable with Amyotrophic Lateral Sclerosis (ALS) and healthy participants (ie family, caregivers, friends, professionals) between 18 and 100 years of age.
This study is motivated by the need for early detection and improved prognostic accuracy of ALS using advanced computational technology and speech data (audio, video). Participants will have access to their own recordings and feedback of analysis of their speech.
Participant data is protected following the FDA IRB approved privacy protocol and the data will be analyzed by many researchers at MIT, Massachusetts General Hospital, IBM, UT Austin, Google Euphonia, and Carnegie Mellon University.
For their information video: https://www.youtube.com/watch?v=hDXtCTQ–MM
To sign-up: https://www.everythingals.org/research
Are you interested in participating in more studies like this one? Have you already participated in similar projects? Was it beneficial? Share your thoughts and comments below.
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