• Living With ALS

  Treating genetically linked ALS

  Posted by Amanda on September 18, 2019 at 9:52 pm

  

  There have been some recent posts about various treatments for ALS. Some of the questions and concerns are regarding the treatment of ALS, especially when it is linked to a genetic mutation. There are times when I read about some of the research, and I get frustrated because it seems irrelevant and not directly related to finding a treatment or cure for ALS. I suppose that all research is helpful and some of it helps to provide a basic understanding of what is happening or not happening within the body when someone has ALS.  There are two approved drugs to treat ALS. There are several treatments being researched that hopefully will provide better results for pALS. https://www.als.net/what-is-als/treatments-and-als-drugs/

  How many of our pALS have a genetic mutation? What medications are you being prescribed? Did you healthcare provider have a discussion with you regarding the kind of ALS (if you have a mutation) and how that would steer your course of treatment?

  Amanda replied 4 years, 7 months ago 1 Member · 0 Replies

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